Seth HAD plans of trying to go to one class at school on Monday but he slept...ALL DAY! He only got up to go to the bathroom. Walking to the bathroom made him nauseas so I gave him some of his nausea medication. We did wake him up later to give him his growth factor shot. I was a little nervous to do it but we were successful. I'm also thankful because we were told just 6 mg of medication in this shot costs about $1000. Also thankful that this is covered by a program right now. He did manage to drink half the smoothie I made him that day too.
Today he slept until about 1pm. He drank about half a smoothie again. We were told his tastes would change with chemo so to feed him whatever he'll actually eat. He was craving sidekicks pasta, so I went out and bought some, made it, and after one bite he threw up and decided he didn't want that anymore, poor guy. I thought this may happen so I also bought chicken noodle soup and crackers. He ate a whole package of crackers and almost 4 cups worth of soup, and it stayed down no problem. He didn't have energy to come upstairs so he stayed in our spare room all day again. Our bathroom downstairs is right off that bedroom so he wanted to sleep there. He did perk up this afternoon but never came upstairs at all.
He has an appointment tomorrow for a PICC Line dressing change and bloodwork. The walk is way too long so my uncle hooked us up with a wheelchair. He has a friend who works in the medical equipment industry who said 'borrow it as long as you need.' We are very thankful for the generosity. I have asked our social worker about programs that may cover the need for this as well. ❤
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| They taught us how to give him this shot but also made sure we knew how to use because if we did it wrong the spring would activate and protect the needle as if it was already used. If that happens before we administer it the medication would just be stuck inside and we'd need a new needle. Thankfully we were successful and we figured if it was that complicated they probably wouldn't get parents to do it. 😅 |
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